Life put in perspective
I look at this journey as adventure not a disorder. But let face it, it's hard and there are days where giving up sounds so tempting. But you have to press on, coming up with new ways to teach, nurture, discipline and so on. Plus the days that are good or not so bad make up for all the bad ones. I love You Sebastian and Riley. Love, Momma
I am beautifully and wonderfully made
I am beautifully & wonderfully made. You may not understand why I do the things I do, but either do I.
Friday, December 10, 2010
Since my last post.
A lot has changed! SPD has changed our plans of me working out side of my home. Daycare was not able to keep up with the demands of our child Sebastian. He is very complex to say the least funny, bright, loving, Big personality, goodness you just love the boy! but he also cries, screams, breaks down, pinches, hits, kicks, bites, steps on things maybe your hand, or a pet (dogs mostly) but he doesn't understand cause and effect. even though he has gone through it over and over again. He needs to control the situation whether it be a toy or a person in his space but he doesn't also understand about your space like if it is ok for him to touch or engage with you he doesn't get your personal boundaries so he may be in your face really close being really loving or sometimes quite strange because he is hurting you (" I see this as needing that touch, impact, interaction, negative attention or positive.") Because of this behavior he is learning how to build relationships. SPD has paralyzed our family financially but our Faith is stronger for it.Through the pain and joy we are trusting GOD to use us as a voice. An AWARENESS for SPD and other paralyzing disorders to families with all different types of income. I can't afford this disorder ring a bell for anyone who reads this blog or maybe that is not your battle maybe it is something else. We have come up with an idea to support our families struggle with SPD. One thing that has always brought joy and a perfect setting for my children with SPD is out doors, hiking, walking, easy rock climbing. So my idea is to make the prints that we have taken as a family of beautiful things we have seen in Colorado. Make them available for donations. (and if anyone knows how that works to set up something like that it would be most helpful.) here are some samples I'll post them tonight when I get the kids in bed. please write I would like your feed back thanks Rachel Humphreys
Saturday, October 2, 2010
THE LOVE THROUGH THE PAIN
My new HOPE is to make an awareness of SPD Sensory Processing Disorder (Because I love my son) He experiences life in a different way. Relying on his senses, witch in description: response to the outside influences around him. This is going to be amazing ride of ups and downs and I want to be the person who Speaks so we can be awakened to what is going on around us.If I can help one person's day go better or they say something that touches me it's worth it. Creating a bond of understanding and connecting with each other through what you are going through. To see what is right in front of us, the people, GOD created, his own creation, Created in his own image, yet all in different ways. We face a lot of challenges on a daily basis and through our pain GOD gives us strength. Not to become a spectacle but help us over come these issues together and not alone. That is why I want to SPEAK! To give my son a voice to something he doesn't understand. He doesn't know why he needs the stimulation of motion, sound, taste, sight, smell, joint pressure, or some other kind of stimulation to one of his senses. HE JUST KNOWS HE DOES! THAT IS HIS DRIVING FORCE TO COPE! Comparison: you need gas to drive your car, to make it work or move. He needs satisfaction from one or many of his senses. I've watch him so many times fascinated and frustrated with how his mind works. How he dose things or how he acts in different situations. Sometimes in GROUPS of people it's like it is to much stimulation FOR PEOPLE TO BE IN HIS SPACE! NOT INCLUDING THE SOUNDS, THE VISUALS, THE SMELLS, AND SO ON. also because he can't control what sense he needs at that time HIS MIND IS ALWAYS RUNNING LIKE AN ENGINE. I WANT TO TAKE YOU ON A JOURNEY OF WHAT IT'S LIKE TO HAVE SPD AND HOW MY SON IS WONDERFULLY AND BEAUTIFULLY MADE. Thank you for reading my post and I look forward to what is to come of this burning desire to advocate for my son Sebastian Jay Humphreys.
God Bless Rachel H.
God Bless Rachel H.
Wednesday, September 29, 2010
I feel my eyes have been opened for the very first time.
Hi my name is Rachel and my son is gifted and has SPD. This has not been an easy ride to say the least, I've spent most of this journey angry and feeling helpless. I know now looking back I've played the roll of a victim. I don't know if anyone can relate to what my husband, daughter, and I have witness but it breaks my hart to see my son go through such aggression. I didn't understand why my son was so afraid of loud sounds or why he started before the age of one getting in trouble for hitting, kicking, biting, screaming, and doing the opposite of what he was told. Afraid I was going to receive a call saying they couldn't watch my son at daycare anymore. Feeling guilty leaving him with someone beside myself. I let this behavior control my life making me feel isolated and cut off from having a so called normal life. Saying this, I can't believe I've been so blind to what is right in front of me. He is my life, I am his mother, and if I can't be his voice who will? So what I thought I wanted is not the same anymore I know it is by no accident he is my son. Though I can't change the past I can and will make a difference now and time to come. Soon my son will have an OT and I look forward to learning more about SPD and watching him grow not afraid he is going to be kicked out of school. Please if you have anything you want to comment on I'm very open and want to find people who can relate to what we are coping with. Thank you for taking the time to read my blog and I look forward to writing again.
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